Episode 29: Sabina Kineen - Fabry Disease

 

Sabina's dad was the first in her family to be diagnosed with Fabry Disease, which is hereditary. Sabina and her sisters were all diagnosed with it shortly after, but there was little known about it at the time, in the early 80s. We talk about the many symptoms that are related to Fabry, including ones affecting mental health. Sabina also shares about the guilt that people can feel with inherited diseases, when it is passed on to their children.

The song Sabina selected is We are family by Sister Sledge.

Sabina Kineen on LinkedIn

 
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Episode 30: Richie Kahn - Wolfram Syndrome & Charles Bonnet Syndrome

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Episode 28: Sara Brebbia-Dirksen - NF1