Episode 50: Jen Cueva - Pulmonary Arterial Hypertension

 

Jen shares her journey with pulmonary arterial hypertension (PAH), a condition marked by high blood pressure in the lungs, which severely affects her daily life. She recounts her initial symptoms, eventual diagnosis, and the physical and mental challenges that followed. As a former hospice nurse and caregiver, Jen reflects on her transition to patient, detailing the emotional impact of her increasing dependence on others. She is now an advocate for those with PAH and rare diseases, working to raise awareness and connect people to clinical trials and support networks.

The song that Jen selected is The Climb by Miley Cyrus.

Jen Cueva on LinkedIn

 
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Episode 51: Andrea Sinclair - Polyglandular Autoimmune Syndrome

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Episode 49: Kerri Mauer - Myasthenia Gravis