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Sylvain Berthelot Sylvain Berthelot

Episode 69: Daniel Price - TSC

Daniel lives with a rare genetic condition, Tuberous Sclerosis Complex (TSC), that results in non-cancerous tumors to grow in various organs, including the brain. From being diagnosed as a child through visible skin signs to managing the complexities of healthcare and advocacy as an adult, Daniel’s journey is marked by courage and community. He opens up about the challenges of transitioning into adulthood, navigating a flawed healthcare system, and carrying the weight of an invisible condition. Daniel is passionate about ensuring adults with TSC are not forgotten and that healthcare becomes a human right, not a privilege.

He chose the song (Everything I do) I do it for you by Bryan Adams.

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Sylvain Berthelot Sylvain Berthelot

Episode 64: Kristina Morgan & Sana Ansari - Type 1 Diabetes

A first on the podcast, Sylvain welcomes two guests, Kristina Morgan and Sana Ansari, both living with Type 1 Diabetes. They each have a very different journey with the condition: Kristina was diagnosed at age 7, while Sana received her diagnosis at 38, during the peak of the COVID-19 pandemic.

Their conversation is both heart-opening and educational, shedding light on what it's truly like to live a "prescribed life" and how chronic illness reshapes relationships, routines, and self-perception.

The episode explores the emotional landscape of diabetes, from the guilt around food choices to the fear of unpredictable lows and highs, and the impact of the diagnosis on identity. Despite the challenges, Kristina and Sana share how their friendship and shared experiences have fostered mutual support and understanding in both their professional and personal lives.

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Sylvain Berthelot Sylvain Berthelot

Episode 46: Mike Davies - Eczema

Mike discusses his lifelong battle with eczema and recent struggles with suspected topical steroid withdrawal (TSW). After being prescribed steroid creams in 2021, Mike found that using it months apart worsened his flare-ups. Eventually, he stopped using the creams, which led to severe symptoms affecting his entire body. Mike shares the physical and emotional challenges of living with eczema, and the importance of self-advocacy and alternative approaches to treatment. Through his voice, he hopes others will consider ways of managing eczema before moving on to treatments such as steroid creams.

The song that Mike selected is Everybody breaks by Ivan and Alyosha.

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