Sylvain Berthelot Sylvain Berthelot

Episode 07: Mackenzie Abramson - Ehlers Danlos Syndrome

Mackenzie knew something was wrong when two different breaks wouldn't heal properly. However, it took multiple opinions before a doctor recognized the symptoms of Ehlers Danlos Syndrome (EDS). She explains how it affects her body, her energy levels and her mental health. She also talks about two other conditions that affect her, postural orthostatic tachycardia syndrome and chronic fatigue syndrome.

The song Mackenzie selected is Fight Song by Rachel Platten.

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Sylvain Berthelot Sylvain Berthelot

Episode 01: Jay Unwin - Fibromyalgia

Jay was diagnosed with fibromyalgia in 2020, and he believes he has had this condition for 20 years before being diagnosed. In this episode, we talk about Deftones, how firbomyalgia affects Jay, and how he balances doing what he enjoys in life with the risk of having a flare-up. 

The music selected by Jay is the album White Poney by Deftones. 

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