Episode 37: Dionne Stalling - SBS & PPPD
In this 2-part series with Dionne Stalling, we focus on four of the nine conditions that affect her.
In part 2, we talk about short bowel syndrome (SBS) and persistent postural perceptual dizziness (PPPD). Beyond discussing the symptoms and how the conditions affect Dionne, we address some important topics in this episode, such as the continuous fight to increase the breadth of what is covered by newborn screening, the challenges of having a restrictive diet and the under-representation of minorities in clinical trials.
The song that Dionne chose for this episode is Easy by The Commodores.
Episode 05: Emily Freeman - Psoriatic Arthritis
It took 20 years for Emily to get the right diagnosis of Psoriatic Arthritis, and to get a life-changing treatment. She shares how overwhelming her symptoms can be, preventing her from doing the most simple tasks. She also talks about patient advocacy and how important it is to hear the patient's voice in healthcare.
The song Emily selected is That's me by Tara Maclean.
Episode 04: Seth Rotberg - Huntington’s Disease
Seth saw how Huntington's Disease (HD) affected his mum and impacted his family. He talks about going through genetic testing aged 20 and the lack of mental health support when being told he also had HD. Whilst he may not experience symptoms yet, he shares his eagerness to take part in clinical trials, and his frustration with the pharmaceutical industry not offering trials for pre-symptomatic HD patients.
The song Seth chose is Feel So Close by Calvin Harris.