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Episode 72: Giselle Cortes - Cushing Syndrome

Giselle shares her journey with Cushing syndrome, a rare and often misunderstood condition caused by an overproduction of cortisol. For years, Giselle’s symptoms were dismissed by doctors as lifestyle-related issues, despite her insistence that something deeper was wrong. She describes the frustration of being unheard, the relief of finally receiving a diagnosis, and the resilience it took to advocate for herself. Giselle’s story is not only about overcoming medical challenges but also about learning to trust her intuition, seek second opinions, and embrace recovery with hope and gratitude. Her message is one of strength, persistence, and encouragement for others who may be questioning their own health.

The song that Giselle chose is Rise Up by Andra Day.

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Sylvain Berthelot Sylvain Berthelot

Episode 62: Barbara Williamson - Sepsis

Barbara shares her extraordinary journey through unimaginable challenges, from a discovery of multiple myeloma to a stem cell transplant, induced coma, severe sepsis, and ultimately the life-altering experience of a double amputation. Despite the harrowing experiences, Barbara’s story radiates incredible resilience, hope, and positivity.

She speaks candidly about moments of darkness, vivid dreams during her coma, waking to devastating news, and rebuilding her life physically, emotionally, and spiritually. Her journey is an inspiring reminder that, even when life as you knew it changes forever, it’s still possible to live fully and gratefully.

Barbara’s strength and determination light up the conversation, making this an episode that stays with you long after you’ve listened.

The song that Barbara selected is Battle by Wookie.

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Sylvain Berthelot Sylvain Berthelot

Episode 54: Joanne Paquette - Ollier Disease

Ollier's disease has shaped Joanne's life since infancy. Her story is one of resilience, adaptation, and hope, as she recounts the challenges of undergoing numerous surgeries, navigating family dynamics, and finding ways to thrive despite her condition. Our conversation dives into Joanne's work as the founder of RAREsies, her mission to support those with rare diseases, and her advocacy for education and awareness. Through her words, Joanne radiates a spirit of determination and a belief in the power of human connection. As she shares her struggles and triumphs, she offers profound insights into living with a rare disease and how one can turn adversity into strength.

The song that Joanne chose is Love Shack by the B-52's.

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Sylvain Berthelot Sylvain Berthelot

Episode 49: Kerri Mauer - Myasthenia Gravis

Kerri lives with Myasthenia Gravis (MG), a rare autoimmune condition that has turned her life upside down. Through profound reflections, she shares the multifaceted impact of MG on her life, touching on themes of resilience, loss, and gratitude. Kerri describes the strength required to live with an “invisible disability” and the journey to reframe her life around moments of beauty and simplicity. This discussion with Kerri feels like a journey in itself, filled with wisdom and warmth.

The song that Kerri chose is Both Sides Now by Joni Mitchell.

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