Sylvain Berthelot Sylvain Berthelot

Episode 12: Ella Balasa - Cystic Fibrosis

Ella is a patient advocate for people living with Cystic Fibrosis, a genetic condition that affects the lungs and the digestive system. Ella describes how it impacts her and what she needs to do every day to manage her condition. She shares how she feels about potentially needing a lung transplant in the future, and the implications of this procedure. We also talk about how she turned her experience as a patient into her career, as she helps pharmaceutical companies develop protocols and documents that are more easily understood by patients.

The song Ella chose is Forever by Chris Brown.

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Sylvain Berthelot Sylvain Berthelot

Episode 11: Renato Trentin - Haemoglobin Bibba

This is the first time Renato speaks openly about his condition. He was born with an extremely rare disease called Haemoglobin Bibba, which only affects two families in the world as far as he is aware. He talks about going through childhood trying to be like everyone else, and living with a condition that is not well understood. We also discuss the impact on his children and why Renato decided to open up about his condition.

The song Renato selected is Sorrento Moon by Tina Arena.

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