Episode 44: Jamie Nicole - Hashimoto’s Disease
Jamie shares her experience living with Hashimoto's disease, an autoimmune condition affecting the thyroid. She talks about how her symptoms, such as fatigue and joint pain, were often dismissed as normal, leading to a delayed diagnosis. We talk about how difficult it was for her to find a treatment for her narcolepsy, due to the lack of diversity in clinical trials. Jamie also shares how medication shortages are affecting her and others, and how dire the situation is in the US. Jamie is an advocate for more education about chronic illnesses, particularly in recognizing symptoms in children, and she highlights her work in increasing the understanding of autoimmune diseases.
The song that Jamie chose is Fight Song by Rachel Platten.
Episode 16: Liz Ferguson - Narcolepsy
Narcolepsy is one of those conditions that people know about, mostly because media have emphasized the extreme cases where people fall asleep in the middle of a conversation. In this interview, Liz Ferguson explains that Narcolepsy is a scale that affects people differently. She shares about having cataplectic attacks that led her to her diagnosis. We also talk about how she has adapted to the condition both at work and in her day-to-day life.
The song Liz chose is Time is running out by Muse.